IMPACTO DA DOENÇA FALCIFORME NA QUALIDADE DE VIDA DE PACIENTES BRASILEIROS E SEUS CUIDADORES: ACHADOS DA PESQUISA DE PERCEPÇÃO, PERSPECTIVAS E EXPERIÊNCIAS EM SAÚDE FALCIFORME
FF Costaa, I Odameb, A Andersonc, BPD Inusad, W Jastaniahe, JB Kunzf, MZ Soaresg, F Montealegre-Golcherh, B Larteyi, M Montalembertj
a Centro de Hematologia e Hemoterapia, Faculdade de Medicina, Universidade Estadual de Campinas (UNICAMP), Campinas, SP, Brasil
b Division of Hematology/Oncology, The Hospital for Sick Children, Toronto, Canada
c Department of Pediatric Hematology-Oncology, PRISMA Health Comprehensive SCD Program, University of South Carolina School of Medicine, Columbia, United States
d Department of Paediatric Haematology, Evelina London Children's Hospital, Guy's and St Thomas'NHS Foundation Trust, London, United Kingdom
e King Faisal Specialist Hospital & Research Center, Riyadh, Saudi Arabia
f Department of Pediatric Oncology, Hematology and Immunology, Hopp Children's Cancer Center (KiTZ), University of Heidelberg Heidelberg, Germany
g Coordinator FENAFAL – National Federation of the associations of persons with Sickle Cell Anemia
j Department of Pediatrics, Necker-Enfants Malades Hospital, Paris, France
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